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Siblings of kids with SN


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#1 flowerrose

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Posted 28 August 2013 - 06:19 PM

I clammed up somewhat about my DS's issues what with one thing or another. Anyway, that was then, this is now and I'm seriously at risk of chewing the one person who listens ears off on the subject. It's perhaps time to try again.

After rounds and rounds of paediatric appointments, specialist referrals, ongoing and intermittent therapy, barnies with school (and quite a few others), etc we had, until last week, established that Ethan has a severe language comprehension disorder. Cutting a very long and circuitous story (in which I have commendably refrained from punching an audiologist) short, that has now changed to speech delay with fluctuating hearing loss from the mild to moderate ranges. Beyond that we are not sure of the path forward as we now have to see another round of specialists.

In any event the result is the same - a woeful receptive language ability that is severely impacting his speech and other aspects of his development, requiring intensive therapy both in the structured environment and at home. When I'm not doing exercises with him, I am researching new ones, looking for information on the new developments, teeing up and taking him to appointments or loading the dishwasher whilst feeling guilty about not doing his exercises.

Which leads to his sister. We are very fortunate in that she is incredibly low maintenance and they adore each other. I am worried about her though. I feel that she is falling by the wayside in all this. She so enjoys our attention and I know I haven't distributed my time evenly in recent months. She is also feeling the difference keenly, wondering why her brother can't talk to her like other little brothers can.

Anyway, I know there are other parents of SN kids on here. Some of you may have found another safe place to discuss these things, I don't know. All the same I would be very interested to hear about the impact you are seeing in your family and how you try to overcome it.

#2 la_jeune_mariée

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Posted 28 August 2013 - 06:55 PM

Oh FR sad.gif I don't have any experience to share but I know that this has been a long and tiring process for you and that you are a deeply loving mother. There are some good forums for Mums struggling with SN on Essential Baby. Many of them would have multiple kids I imagine.
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#3 ClaireBear

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Posted 30 August 2013 - 11:09 PM

Right there with you. But it's impacting on his brothers behaviour. Will post more when I'm not getting packed up for work tomorrow.
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