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#1 mango

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Posted 23 September 2012 - 08:05 PM

We have a paed appointment for ds and I am freaking out. It's a few weeks away yet (we have been waiting for months) and now that its getting closer I am starting to stress. I am so worried, not that it will come back as a diagnoses but what if it doesn't. It's costing $450, money we don't have. We just need answers, we are desperate for help.

#2 Princessdora

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Posted 23 September 2012 - 08:45 PM

Edit didn't look at the area it was posted sad.gif $450 seems alot we went to one at Hornsby and it was $250
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#3 jantastic

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Posted 24 September 2012 - 06:55 AM

I understand that you're scared. Appointments like this can be life changing, and out's totally ok to be scared. Either way though, it IS easier knowing. I don't have experience with autism, but I know a little about waits and appointments and wondering which is easier.

You will get some money back from medibank, and the rest will help bump you to the safety net. I know that's small comfort, but it helps a little.

Good luck- I hope you get some answers.

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#4 chelley

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Posted 24 September 2012 - 08:26 AM

We too have had a LOT of appointments with Raffie and the waiting time, and the associated worry and anxiety is very normal. You are not alone.

The high cost is not far off what we pay our paed if we are having an extended consult or an initial consult. I am happier to pay this, which I agree is a large expense, if I am not rushed and I prefer to know the paed has scheduled a large enough block of time. If any testing is done you may find this fee includes that.

It is a different item number and you will be rebated more from medicare. If you have reached the safety net you will be reimbursed further which is better than nothing.

Try to write down a list of questions you have. It is easy to go into an appointment and feel overwhelmed - or distracted if keeping an eye on the child and listening with the other ear.

Also ask them to write down a summary of main points discussed as a recap. At one appointment I could honestly see the Dr's mouth moving and couldn't literally hear what she was saying "I had to say, I'm sorry I'm just not hearing what you're saying (think I was in shock) I don't understand what you are saying. She was kind and had no problems writing things down. Also remember to bring the Blue book - or whatever book you have for the state you live in.

Diagnosis or not, having help is the most important tool for coping. I would ask what support you can have/ he or she can recommend if there is a diagnosis or what they recommend if no formal diagnosis made.
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#5 SEA

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Posted 24 September 2012 - 07:57 PM

I hope you're able to get some answers at the appointment.

Like the others have said - you should get some back from Medicare. Could you ring the paediatrician's office and see if they will let you know how much you may get back? The receptionists at the paed we visit will tell you each time how much you should be reimbursed. I often write a list of questions too, as I will always forget one or two points.

Thinking of you x

#6 ClaireBear

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Posted 24 September 2012 - 08:56 PM

I've been where you are, Jazy. My son has ultimately been diagnosed with a more generic developmental delay where some "symptoms" are similar to autism.

We wrote out our list of issues and went through them one at a time. This meant we didn't miss anything as it can be a bit emotional when you are there.

Do you get a carer's allowance for him? Under our paeds guidance, we applied for this. If you don't get it and plan on applying, you need to file a notice of intent to claim through centrelink. Our paed will fill out the medical report separately for a small fee but others like you to bring it with you to the appt. maybe call the receptionist to find out. We ended up getting knocked back but he did qualify for a health care card.

I would also ask for referrals to early intervention programs that might be suitable, recommendations for speechies, continence clinics, anything that you feel might be of assistance.

I hope you get some answers but iit is a long road. Good luck.
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#7 mango

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Posted 24 September 2012 - 09:45 PM

Thank you ladies for all the replies. The appointment is a 1.5hour consultation and we will only get $125 back. We need to submit our observations as well as daycares before the appointment. Pretty sure we will need more then 1.5hours to discus my multiple page list so far.

Clairbear, I haven't claimed the careers allowance for him because I didn't think we would be entitled till after a diagnoses. Do you think it is worth putting in an intent to claim now? Then hopefully we will have whatever paperwork then and there at the appointment so can do it straight away.

Tgink we will need All EI programs. wacko.gif

#8 ClaireBear

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Posted 24 September 2012 - 10:07 PM

Once you have filed your intent to claim, you have 14 days to submit the paper work (which they usually take up atleast 5 of when they mail the form out to you).

I was told that you need to be putting in atleast 14 hours per week of additional care than you would for the average child, but I think we would hit that and we didn't quite make it. So things like toiletting, extra work with daily communication tasks, personal care, preparing and dispensing medication, tantrums and heaps of others all count. Once the doctor has filled out the medical report, they send you another form asking you a lot of questions about your child's abilities, sleeping, talking, socialising etc but if you get approved, the money is back dated to the time you filed your intent to claim.

So I would phone the paed's office and ask the receptionist if the paed prefers to fill out the form on the day of the appointment or if you leave it with them and then based on their answer, decide when to phone centrelink as they do only give you two weeks to get it all in to them.

Hope all this makes sense. Centrelink do tend to make things shockingly complicated.
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#9 mango

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Posted 24 September 2012 - 10:21 PM

Ok that makes sense. I will call the office tomorrow. That's very helpful.

#10 hanes

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Posted 25 September 2012 - 03:30 PM

I don't have anything extra to add, I just wanted to say Good luck with the appointment smile.gif
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#11 Camilla

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Posted 27 September 2012 - 04:08 PM

I just thought I would add that if the paed suspects that he may be on the spectrum, he should charge your appointment with an item code 135 which will then allow you access to the Helping Children with Autism scheme that gives you access to 4 assessments and 20 sessions with a psychologist/OT/speech pathologist to help with diagnosis and management. If he happens to be diagnosed on the spot, you might consider applying for the carer's allowance straight away as if you receive it, you get a health care card (reductions in prescriptions and some other things) plus your safety net for the child is reduced to the minimum so you can reach it faster (and save more on your out of pockets). You can also ring and put in your claim (they will send out forms) as they will back pay you to the date of your phone call rather than the date of the forms being filled in.

All the best for you appointment and I hope you get some answers either way.

ETA: Those fees sound about right for an initial appointment regarding ASD. They are more expensive as they are longer appointments and as I mentioned above, can result in access to more funding.
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