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Hearing impaired babies


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#1 pink teddies

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Posted 20 September 2008 - 09:19 AM

Hi all,

I dont know if anyone else has this issue, but Ryan was diagnosed with a permanent unilateral hearing loss when he was a few weeks old. Since then it has been appointment after appointment to determine how severe it is.

He has Severe hearing loss in his left ear and mild hearing loss in his right ear. We have been working with Australian hearing and an ENT as to what to do and they believe that he was going to be ok without hearing aids, but given the constant illness over winter he now how fluid build up and we are supposed to put hearing aids in him which is near impossible!!

Does anyone else have a baby/toddler with hearing aids etc. I would love to know how you deal with it and also how you make sure that your Drs are listening to you and not discounting that you dont know what you are talking about! Also have you gone into early intervention and did you find it helpful?

#2 Renee`

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Posted 20 September 2008 - 09:49 AM

Oh Bec, I have no advice, wish I could help you more, but just wanted to say I hope the doctors come around and listein to you more. Don't understand why they think that parents don't know anything..
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#3 Emtree

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Posted 20 September 2008 - 09:53 AM

I'll have a talk to my hubby tonight. He has been deaf since early childhood. He has had numerous operations and has worn hearing aids for most of his life (I think)
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#4 MrsMolly

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Posted 21 September 2008 - 09:00 AM

Slightly off topic, but I'm presuming you're aware of baby signlanguage? You probably are.

Generally that it can be used (and quite effectively) at an earlier age than most kids can get words out..

Anyways, might be worth looking into it, if you haven't already smile.gif

#5 pink teddies

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Posted 21 September 2008 - 11:25 PM

Thanks Girls for your replies

Renee thanks for your understanding - I agree that Drs/specialists should listen to parents more - I mean we are the ones that are with our kids the most right!

I am going to be more forceful with our audiologist next time we go in for an appointment as I get so annoyed when they are doing the test and saying that he failed even though I say that was a definite response because of all the false positives (which they are only getting because they dont have his attention!!)

Mrs Molly I have heard of the baby sign language, but given Ryans special needs for speech development we have to work more on the words. in saying that I think that it is a great idea otherwise, I have a friend who is doing that and they think that it is great.

#6 Keir

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Posted 22 September 2008 - 12:43 AM

QUOTE(Bec (Brissie) @ Sep 20 2008, 09:19 AM) View Post
Does anyone else have a baby/toddler with hearing aids etc. I would love to know how you deal with it and also how you make sure that your Drs are listening to you and not discounting that you dont know what you are talking about! Also have you gone into early intervention and did you find it helpful?
Calmia's little girl Mia was diagnosed with hearing loss earlier this year and has started wearing hearing aids. They are having treatment and education through the Hear and Say Centre in Brisbane - she has nothing but praise for them!
I'll email her now with a link to this thread!

#7 Ludo

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Posted 23 September 2008 - 11:02 AM

I just wanted to say don't be afraid to be assertive with the doctors. Although it is different, my BIL is mentally disabled. But my MIL has told me she was incredibly frustrated over the years at the number of doctors who would not listen to her and try to tell her she didn't know what she was talking about when she was right that something was wrong or the best way to handle BIL etc. They may have the degree but you spend 24 hours a day with your child so you know what is normal/unusual behavior, his quirks, personality etc. So don't be afraid to stand up for your son and yourself.

#8 chelley

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Posted 29 September 2008 - 01:19 AM

I am a teacher of children with hearing impairments in Sydney and last year I was teaching an early intervention class.

I have not seen your son's audiogram - looking at an audiogram can usually help asess the need for hearing aids.

I think you should definetely be assertive with the audiologist and with working with parents frequently I can understand this is hard to do when they have the testing equipment.

If your son has fluids in his ears as well this will indicate he has a loss that is perhaps greater than he actually has.

I would imagine if there is fluid then the ENT may wish to insert grommets which does not drain the fluid but helps air to enter the canals and dry the ears out. If there is infection children generally do not wear their aids until the infection/fluid issues have resolved - well at least in my experience working with kids.

I have heap of resources which I am happy to PM you about if you have more specific questions/issues - sorry was just ducking into the forums quickly because it is late and doing a late breastfeed.
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#9 pink teddies

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Posted 02 October 2008 - 08:28 AM

QUOTE(chelley @ Sep 29 2008, 01:19 AM) View Post

If your son has fluids in his ears as well this will indicate he has a loss that is perhaps greater than he actually has.

I would imagine if there is fluid then the ENT may wish to insert grommets which does not drain the fluid but helps air to enter the canals and dry the ears out. If there is infection children generally do not wear their aids until the infection/fluid issues have resolved - well at least in my experience working with kids.



Thanks Chelley - Ryan does have fluids, but no infection (there was one, but it cleared up). The ENT believes that the fluid will drain at its own accord and they want to use hearding aids to assist with his hearing during this time.

I would love to get any information from you on what I can do to help smile.gif Thanks



#10 chelley

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Posted 02 October 2008 - 10:50 AM

Okay no worries - Pm me your email account and I will email some resources I have your way smile.gif
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#11 Party Of Five

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Posted 23 May 2011 - 05:12 PM

QUOTE(gkoreioprg @ May 23 2011, 04:31 PM) View Post

Hearing impairment is the decreased ability to hear and discriminate among sounds. It is one of the most common birth defects. There are two types of hearing impairment, according to which part of the ear is affected.


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